Sleep

It is 3am. My daughter is awake. How do I know this? Well, she gathered her toys and wandered into the hallway to play with them. Now I am awake. Through experience I have learned that time is of the essence – if I can get her back to bed quickly, then the odds of her falling back to sleep improve enormously. If that doesn’t happen, she will become more and more awake until a threshold is breached and she is fully awake.  My daughter has always had an issue with sleep, or lack thereof. As a toddler, her sleep…

Keep reading

Listening

In today’s pandemic-induced, mask wearing world we lose a number of nonverbal cues that guide us in our everyday interactions and that can make it more difficult to ‘read’ people. It could be said that it gives us a fleeting glimpse into parts of the autistic world. The reality is it is incredibly difficult for people who are not autistic to truly appreciate and understand the autistic world, in part due to the diversity of individuals with autism; as we say, “if you’ve met one autistic person you have only met ONE autistic person”. The autistic community also has diverse…

Keep reading

Escape

Before having our children, I thought eloping was running off to get marriedwithout the trappings of conventional marriage; in Scotland, where I amfrom, couples would travel to Gretna Green to get married.  In the 18 thcentury it became a haven for young lovers following the 1754 MarriageAct; if you were under 21, you were forbidden to marry without yourparents’ permission. Today it means something very different to me and many others in a similarsituation; 49% of children with autism wander from supervised, safe places.Of those locations, 74% wander from their homes and 29% wander fromschool or the classroom despite everyone’s…

Keep reading

Autism Awareness Month

As a parent of a child with special needs, life can be very much a battle; a battle for services, support, respite, acceptance and understanding. We often do this on our own, within our own family unit but broader family and community support is both invaluable and essential.     Autism awareness month is April. We have our own month to remind everyone we are still here and -importantly – we get an opportunity to help people understand who we are and how we can be accepted and valued.     Autism Speaks has been very successful in engaging with…

Keep reading

Why I Do What I Do

I am a scientist, investor and proud father of a child with autism I am working from home, or rather trying to. My daughter is back from school; today is a half day. She is sitting next to me, trying to get my attention. “I am grumpy and tired” she tells me. She pokes me until I respond then gives me an enormous smile. The phone rings and I answer it – a work colleague to go over data on a new cancer drug. Within 5 minutes my daughter is agitated and shouting. She doesn’t like daddy talking on the…

Keep reading

About Me

Hi, I’m Brian, I am a scientist, investor and proud father of a child with autism.

Subscribe to My Blog

Get new content delivered directly to your inbox.