A grateful dad says thank you to healthcare workers!

The pandemic is still raging. We are in the midst of the impact of the Delta variant….. and Lamba lurks in South America. Along with increased knowledge of the Greek alphabet, it means that we may have to accommodate continued change as we prepare for a new school year. During the early summer, my teenage daughter and her friends became eligible for the Covid-19 vaccine and our town set up a vaccine station in our local park. On the first day, two hundred 12-17 year olds turned up and formed a rudimentary queue. My daughter’s sensory issues mean that queues…

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Back to school…..again: a guest blog from our friends at MindNest

It’s back to school time again, and for the second year in a row, the world is far from normal. This can be a challenging transition for any child in any year, but especially more so for those with an autistic child in the family. With that in mind, we reached out to the team from MindNest Health and asked them for some top tips to guide us as we ready our children to return to the classroom. Those of you who follow NNF may remember that MindNest Health is a digital health platform that came out of the Yale…

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Summer

When I was a kid, summers were magical. We had no school and, as latch key kids, we roamed outside all day with friends until it was time to go home. There was also the obligatory family holiday; some were fun, some less so. Nevertheless, it was a carefree time and strong friendships were forged, many of which still last.   As a parent of an autistic child, summer couldn’t be more different. When school is over, so is the structure and support that comes with it. Maintaining the services, structure and consistency that are required to keep our lives…

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Sleep

It is 3am. My daughter is awake. How do I know this? Well, she gathered her toys and wandered into the hallway to play with them. Now I am awake. Through experience I have learned that time is of the essence – if I can get her back to bed quickly, then the odds of her falling back to sleep improve enormously. If that doesn’t happen, she will become more and more awake until a threshold is breached and she is fully awake.  My daughter has always had an issue with sleep, or lack thereof. As a toddler, her sleep…

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Listening

In today’s pandemic-induced, mask wearing world we lose a number of nonverbal cues that guide us in our everyday interactions and that can make it more difficult to ‘read’ people. It could be said that it gives us a fleeting glimpse into parts of the autistic world. The reality is it is incredibly difficult for people who are not autistic to truly appreciate and understand the autistic world, in part due to the diversity of individuals with autism; as we say, “if you’ve met one autistic person you have only met ONE autistic person”. The autistic community also has diverse…

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Escape

Before having our children, I thought eloping was running off to get marriedwithout the trappings of conventional marriage; in Scotland, where I amfrom, couples would travel to Gretna Green to get married.  In the 18 thcentury it became a haven for young lovers following the 1754 MarriageAct; if you were under 21, you were forbidden to marry without yourparents’ permission. Today it means something very different to me and many others in a similarsituation; 49% of children with autism wander from supervised, safe places.Of those locations, 74% wander from their homes and 29% wander fromschool or the classroom despite everyone’s…

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About Me

Hi, I’m Brian, I am a scientist, investor and proud father of a child with autism.

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